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Discovering Celiac Disease

6/27/2016

2 Comments

 
Believe me when I discovered I had celiac, I could have cried as i mourn the loss or not having gluten in my life. Pizza, cupcakes, tarts, pies , puddings and bread everything I love is pretty much made up of gluten .I felt sorry for myself, even received an  obituary card that my life has officially ended. I had such a bad relationship with food that i was lying to myself and stuffing my face with cereals or a cake in hiding and always told myself no more gluten tomorrow onwards. Ya right, like that's going to happen.

Obviously this had to end since i'm just destroying my intestine and also my rashes was getting out of hand. A week before that i was misdiagnose for my rashes to be herpes simplex but I didn't believe it and got more test done. In fact i was having dermatitis herpetiformis.

They do look familiar below but of cause the issue i was having with my skin is :
​Dermatitis herpetiformis (DH) is a rare but persistent immunobullous disease that has been linked to coeliac disease (American spelling celiac), a gluten-sensitive enteropathy.

I know it's so disgusting i hope you had dinner! So where was I ? Oh yes eating gluten is pretty much killing me and guess that i do need to alter my lifestyle just a little bit more. Don't worry i don't have any more rashes after two week of giving up gluten and probably even lost some weight from all the cookies i can't eat! Bless them .

When I am out and have to make choice on my food I pick anything without gluten or would tell the staff to skip the bread, is it okay? Honestly not because I risk being contaminated from other food that contains gluten but I guess thats the choice i have to make and i definitely prefer cooking at home. Sam on the other hand love bread and i guess I would trade bread for chocolate for now until I learn how to bake gluten free bread that don't taste like cardboard. 

Any Celiac  out there? How did you discover this amazing disease that is way more horrible than chicken pox?



2 Comments
N
2/5/2017 04:40:19 pm

Hi Jasmine, would you have a name of the specialist you worked with to identify your DH to share? Thanks!

Reply
Isabella Lucas
11/8/2022 04:59:50 pm

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